Saturday, November 20, 2010

Well here we are

So the Dr's started Alexa on Heparin and TPA to try and dissolve the blood clots. The heparin is a blood thinner so that she doesn't created more clots and the TPA is what they use to try and blast or dissolve the blood clots. There are 3 blood clots in 3 arteries around the heart. So far they have not caused any problems. They have decreased somewhat in size. The 2 littler ones don't speed up or slow down the blood flow. The bigger clot however does speed up the blood flow a little. She had her last does of TPA yesterday. They don't want to to give her anymore TPA because it is too risky for her to start to bleed out. They are letting her body take care of the clots themselves for now. They have started her on blood thinning shots that she will have to continue for the next 6 months. It is to be given twice a day that I have to administer ... YIKES!! We watched the nurse give her the first shot this morning. NOT FUN! She cried harder then I've ever heard her cry as of yet. This shot will also bruise her every time so I'm not even looking forward to what her poor little thighs are going to look like.
Her chest tube is still draining so that has to remain in until it drys up. The fluid that is draining from the chest tube is basically inflammation from the surgery and the thoracic lymphoid. If the fluids don't clear up within 2 or 3 weeks then she has to have another operation on her belly to claps shut all the lymphoids in the belly. This is not a guaranteed fix so this is a last resort operation.
They have also started her on formula today. I'm super excited about this. It's a special fat free formula that goes through her feeding tube. It has been almost a week since she has had any food other than the nutrients they have been feeding her through IV.
Dr. Emge who is her cardiologist in Boise is really trying to get her back transferred to St. Lukes. Preferably this coming week before Thanksgiving. We are keeping our fingers crossed this can happen. So far things are looking positive just a long recovery. We will take it as long as she continues to get better and if she can be in Boise so that we don't have to be apart from the other kids.
I can't believe she is already 2 weeks old. How fast time has flown.

2 comments:

Sarah said...

Sounds like improvement! Love to hear the good news. :) Little victories!

MarLeice said...

Robyn,

Keep on posting information for us. I look regularly and she is in our thoughts and prayers. I hope you get to bring her home soon. She is a cutie and definitely has yummy cheeks.
Aunt LoAnn